Operation GSD

Today I started physical therapy again. It’s been far too long, and my body has degraded again down to the functional mechanics of an 85 y/o. This year has been discouraging for so many reasons, some of which I am not ready to talk about yet. In time, I will, but it’s not time yet. Suffice it to say that physical ailments and mental health are very closely connected and affect each other greatly. And I still feel like the fixing needed to get my body back is so extreme it feels impossible. Pneumonia really knocked it out of me. I can’t reach my arms up to get a plate off the shelf. The idea of walking a few blocks sounds exhausting to even try. I get mad when I realize I left my phone upstairs and have to retrieve it when I’m already running late and I can’t just jaunt up the stairs.

I am apprehensive. I have hated this body I’m trapped in; it’s been a constant uphill battle that never seems to cease and desist, or even plateau. I’d take a plateau, honestly. But nope, pneumonia and seasonal depression etc. etc. have set me back to square one. Do not pass go, do not collect 100 dollars.

But I’m starting small. Very small. As in, take a deep breath, right now. Do it. Just pause everything, and do it. Done? No? Do it. Close your eyes and do it.

Okay good. We default to exist in such a small amount of breathing space. But there is something cleaning, refreshing, manually calming, that ‘turning the corner’ feeling that happens in that brief moment when you allow yourself to do nothing else but take a deep breath.

So, I’m starting there. Again. And I don’t know how many more times I will start again. But I can. Even if I’m faking it until I actually believe I can.

My life path has been divergent, to put it in one word. And I do struggle with feeling disappointed in myself, and generally not feeling like I exist at all or for any real purpose. Depression is an unruly animal. But I’m starting again. #OperationGSD. aka, Operation Get Shit Done. Whatever it takes. Here we go. Again. Goals, I’m coming for you. #GSD!

I am learning so much about myself and why and how I work (and don't work). I am trying to take every bit of knowledge, every insight, every critique, every hope and dream, every disappointment; and turn it into something beautiful. That's what this means to me. It's not easy. But I hear my Self say: Take a deep breath, right now. Now, get shit done.

On Growing

1

it feels like cold liquid metal climbing your neck

sealing off airways

solidifying your upper vertebrae

and brain stem into a

silver statue

while your jaw spasms

tilting your head backward until all you can see is up

muscles tightening, backing into a dim corner

and it goes dark.

Sometimes it’s just for a moment-

I’m sitting on the stairs in front of the kitchen door

shoes on, ready to go

but something invisible grips me

and I can’t move my body

Sometimes it’s for a long time- days even.

Laying still, crooked but frozen,

a week of night sweats still in my sheets

as the only protection I have from facing myself

and the possibility of the world.

it makes breathing hard, burning like that

it makes you sink into the floor like lava--

the kind you’d avoid as a kid

hopping couch cushions and chairs--

is now what your body is made of.

disappear, wane, vanish, seep away

and every other word or phrase

I can think of to describe

that darkness

and what it makes my head do

I just want to dissipate, dissolve,

disappear--

and then, light.

I can’t explain it

it’s my mothers’ arms

it’s naming green objects in the room

it’s the final slam of the door

or my face on the floor

sobbing into the grass and then

turning over to the sun in my face.

remembering love

remembering breathing

remembering light. life. living.

Remembering beauty and terror.

both things

inseparable

two sides of the same coin

the back and palm of your hand

the curve and the concave

the wave and the particle light

the ultimate paradox

the only thing I call

Truth.

2

There are many things I wish I could do

dance professionally

grow as many botanicals as I wanted

decide the weather

I have my poor-man’s version of my dreams:

I work and stretch my muscles every day

I have a large assortment of herbs growing and

bundles hanging around the house

drying for tea as autumn settles into my stomach.

but I ache to be the best version of myself.

whatever she is.

I dream of her, see visions of her

sometimes catch glimpses of her:

early mornings with coffee and my dog outside

watching her discover every single leaf in the yard

and carry it triumphantly over to me.

I should treasure my possessions

like she does:

delight in every single leaf in the yard.

My lemon catnip tea from my garden

and my bundles of lavender hanging

upside down.

Be in awe of my body holding on through waves

that can crush bodies alive.

To stand in awe, that here, she is:

in the mirror, post-anxiety attack

after crying or anger or joy

after laughing with friends or burning a candle

to look her in the eye

to stand in awe of her

of that version of me;

no better than five-minute ago me

no worse either,

and say

She

is the best version

of me.

3

I came home today with

a bundle of oregano that took two hands to carry inside

a fistful of thyme, a skirt-full of lemon catnip,

a fortune of lavender blossoms and four tomatoes.

There are still five bell peppers swelling

and three dark purple eggplants dropping slowly

from their leafy perches

and still a forest of curly kale.

The squash leaves are withered

and the sunflowers stand their mournful

beautiful ground

only their eyes saw the summer bees

and bunnies

playing in my garden.

They are echoes, those large heads

stalks three fingers wide

of the former days

of early Spring leaning graciously into Summer

I think of my own cycle, echoing the seasons-

echoing the sunflower heads bowed

some of my stems broken; petals brown and dried

like tissue paper.

I was tall, once. Bending towards the sun

I was majestic; colorful; fuel for the bees’ sacred mission--

and I am now cold, dry, like tissue paper

and just as defenseless. Susceptible to water,

damage, fire, frost.

But inside me

are echoes of those summer heads:

ideas floating like bursts of life

the many seeds of new lives that are coming

and one day, I too

will dig deep my feet

and grow again.

Published, Cancer Planet, Expectations and My Precioussss

Hello hello hello. NEWS FLASH I have good things to report after a long spell of not-as-good things.

I have the pleasure of being published by elephant journal again, and you can find the article here. Feel free to read it and pass it along to anyone who you'd think would appreciate it. The first time I was published by elephant journal was back in 2014, and this new article (like the first) is an adapted excerpt from this blog. The original post was written at my one year post-transplant anniversary. This article, To the Girl in the Waiting Room, holds close many of those same words- but I've re-written it a bit from the perspective of my current self: a little over two years out.

With another year under my belt, I was...well, not surprised really, to have a lot in common with the one year old me. I'm still struggling with a lot of the same things. Depression, frustration, etc. What I didn't really expound on in the post (both the original and in the new version) is the real let-down of being "one year out" (now "two years out") and having your expectations of where you should be crushed to pulp. I mean, the sentiment is there I think, as it does have a lot to do with depression and I believe it to be a pretty common feeling among cancer patients. Or anyone, really. We have expectations for ourselves: where we will be, what we will have, what we'll be doing... We have expectations for other people: what they'll do, how they'll treat us, how they'll react to us or a situation. And when the reality sets in and those expectations are not met, it can be crushing. Sometimes its a close miss, other times it's like you're on a different planet. So here I am on Cancer Planet. Yeah...Not the planet I was expecting to be on at 27, definitely not the one I thought I'd be circling the sun on for the last two and a half years. But even on your planet, Cancer Planet not excluded, you develop expectations of how this will go, where you'll be in some amount of time, etc. ...And then a giant meteor comes hurling out of nowhere and there's no Bruce Willis to save you.

Expectations are faulty: when they are unmet, they cause animosity in relationships, they cause self-doubt, fear, depression. And it's not like we can always help it either. So many of our expectations are subconscious, and sometimes they operate entirely in that realm: the subconscious mind builds these expectations, the expectations are not met, and then we're angry, frustrated, sad, upset, pick your adjective, and we may not even realize why.

I've been working to try to peel away my own layers in this respect: to have a deeper understanding of my own emotions in all situations in which I find myself. Sometimes it's difficult to understand- why am I feeling anxious? Why am I having a mental breakdown right now? Why am I angry? It's not always (ha-ha, almost never. Let's be real.) a rational one-to-one ratio of symbolism or set of chain reactions. But I am really trying to 'unpack' as they say, my emotions and try to get to the root source of them. Why am I anxious? I may not be able to go through this mental game while I'm having a panic attack- but maybe after it's over I'll think back and see if I can figure out a trigger, whether exterior or interior, that may have set it off. When I'm angry or frustrated (again, maybe not so much in the moment...work is work is working on it): what is this really about, under the surface? What is the expectation that is not being met? And what can I do about it?

My mother, in her great wisdom, told me long ago that almost every relational problem (people interacting with people: it can be corrosive!) stem from unmet expectations. I have discovered time and time again that this is very true. Whether or not those expectations were conscious, unconscious, rational or irrational... When they are not met, we respond with a negative emotion (again, pick your adjective). And I think, to dig even deeper into this, these problems really come from the fact that we are individuals. We are intrinsically different from each other. There is NO ONE like you. Not one other person who is like you in the entire world. One of my favorite quotes from Carl Sagan (of which there are many) is this:

"If a human disagrees with you, let him live. In a hundred billion galaxies, you will not find another."

And this gets at a True thing: each person, with their eccentricities and flaws, is singular. And I think if we really take this idea and honestly hold it in our lives: we will be overcome with awe. Human beings are incredible. They are also incredibly complicated, and our emotions get more complex as we mature and are able to simultaneously exhibit multiple deep-seeded emotions at once. It's a really weird and often irritating thing that we do.

So, to backtrack here a bit after all that rambling- I'm trying to understand and place myself as a part of this Awe. I disagree with myself all the time. "C'mon body, you stupid stupid lump!" "Seriously, brain? You wanna go there right now?" *insert panic attack* "Are you kidding, muscles? How can you cause so much--AHHHHHHH" (muscle spasm, tears, anguish.)

But I'm gonna let me live. Because in a hundred billion galaxies I will not find another.

This is not meant to appear or manifest as self-love to the point of self-worship. I suppose there's people who struggle with that *cough-Trump-cough* and that's a different thing. I'm talking about the self-hatred that exists within so many. We need to view ourselves and each other as innately precious and individual. And we need to take the time to honor that preciousness by trying to understand ourselves and others better. Our true motives, even if the result is flawed. After the panic or anger or embarrassment subsides, to take a minute to figure out the under-workings going on there. And perhaps, with enough practice, to be able to do this sort of mental exercise in the midst of difficulty: to see ourselves as precious, as the other person (if another is involved) as precious, and act accordingly. To take care of what is precious.

So here's to you, My Precioussss.

No but really.

In other news, anti-depressants can really work. I started a new one on top of the one I was already taking, and it is helping a great deal. I am very pleased to to say so. After a very long time of a hard time, it's nice to have a more steady emotional state. At least, without the increasing depths of the low times. Those haven't been back for a couple weeks.

And I'm going after my goals. I'm writing more, again, as I'd hoped I would. I'm exercising (AKA KICKING MY ASS INTO GEAR OMG) and building muscle and increasing my flexibility. Every morning I wake up (IDK how long this will last; I hope a long time!) and I think: NO STRINGS ON ME. Going after my goals like a mofo. YOU HEAR DAT EXPECTATIONS? But I also know it won't be a constant happy road. I'll hit bumps, plateaus and valleys like anyone else. But I'll let me live. My Precious.