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Saturday, March 7, 2015

Day 527: FIGHT


Tonight I am thinking about human imagination.

Everyone is stuck somewhere. And if you aren't, please send help to me and the rest of humanity back here, we've got our wagon wheels stuck in the mud and grandpa's dying of dysentery.

But there's one thing we do have in us: the ability to imagine. This tool is afforded to human beings. Sometimes this tool is laughed at by others or stomped out by growing up too much. And I'm not just talking about daydreaming here, or about thinking up the next big iPhone app. I mean true human inventiveness. The raw ability to take shitty circumstances and find a way to live with them. And not just live with them; live through them. Survive them and be better afterwards. To be able to look back and see the triumphant tracks of a slimy mud-covered human body that dragged itself through that sludge. If you can't see a way out, you aren't imagining big enough.

Perhaps time will make me a fool, because I know there are some things that can't be changed in life. But I think a lot of the time we give up too early.

I don't want to give up too early. I want to fight. 

But it's hard to accept what is. I know that today is today. I know that today I can’t fully extend my arms because the muscles are so contracted, and that my lung function has decreased. I know that it is what it is. And I hate what it is. I hate that I am trapped in a body that is not mine.

I have also been fighting. I started the Livestrong program at the Y two weeks ago. Last week I went to a stretching class at the Y, and the instructor had told me previously that it was incredibly low-impact and that anyone could do it. As we went through the incredibly elementary stretches, I was keenly aware of how far away I was from my body. The body that I know, the body that is gone now. I couldn’t complete even 15 minutes of the class because my muscles were spasming and I was getting upset. I left and went to the bathroom and cried.

After expelling my almost-tears I went to the large studio next to where the class was being held. It had rubber floors and a wall-to-wall mirror. It is something completely different to look at your body up close (the way you do at home) than to observe yourself from afar. I walked into the empty studio and looked at myself from across the room. I looked hollow. My shoulders stuck out. My nose was pink from crying, and I looked a sloppy mess. I rolled up the sleeves on my t-shirt and walked toward my reflection, trying to remain calm. I started to stretch on my own, the little that I could do without causing spasms. I tried to accept myself with my limitations. It is what it is. I looked myself in the eyes. But I started crying again, because it’s not fair what happened to me. It’s not fair. And I feel like a lost cause, a body too far gone to ever make it out of this sack of bones. Full recovery seems impossible. The steps that I need to take are so miniscule that it’s embarrassing and an insult. And then I cried because I should be thankful to just be alive. But it’s not enough for me, to just survive. I want to survive and be better afterwards.

And what is this "self" that I'm trying to get back? It's also not enough for me to wake up, go to work, make money, give it to someone else, and repeat. To live just to support the way that I live. That's not living. And sometimes we feel trapped in cycles that we hate. Consumerism, the Grid, "The Man", immigration laws, an abusive relationship, addictions, mandatory obligations, whatever it is. We can't see outside our own bubble because our bubble is so goddamn full of shit. A shit bubble. I'm trying to see if there is something else, here.

I need to exercise my imagination. Expand it bigger in every direction. I need to grow to believe in this wild thing: my body better than it was before cancer. To believe there is always a way through and beyond shitty circumstances. To get out of the pain cycle, the dull life cycle, the Rat Race. No one belongs there. To cultivate an inner universe that reflects the wonder, love, compassion, forgiveness and generosity that I believe to truly exist in reality; one that uses ingenuity and resourcefulness and determination. I'm going to imagine! I'm going to work! I'm going to put in the time! I'm gonna find a way out of every mud-stuck wheel! I'm gonna scrounge, scrape, pummel, hunt, rummage and explore until I find what I'm looking for! I'm gonna stretch one pinky at a time and lift ping pong balls as weights, if that's what it takes! I'm gonna keep fighting my way through this shit bubble, and (pardon my language) I'm f**n taking you with me! 
Come on, let's see what's beyond this thing!

 
Whoever you are, no matter how lonely,
the world offers itself to your imagination--

-mary oliver

2 comments:

  1. My roommate Austin (Martin) shared your blog with me a few months back. It's been really affecting to me, and I wanted to thank you for writing it. And, if it's ok, I wanted to share a few thoughts that it sparked for me.

    Whatever the truth is, you’re living closer to it than any of the rest of us. And I’d imagine that it’s horrible and draining and far, far too real. But you’re there, and you’re reckoning with it every single day. And you’re still choosing love over bitterness. (And the thought of that just made me cry for a little while.) Whatever it is that we’re meant to be doing here, you’re doing it. I don’t know what happens with our lives. We get closer and further away from the scary big things, I’d imagine. What you are living through right now is not a waste in any sense of the word. And I know it must be so horrible. And I'm so sorry that you're going through this.

    Two things came to my mind, for what they're worth. One was a classic Neutral Milk Hotel lyric: "And one day we will die, and our ashes will fly from the aeroplane over the sea. But for now we are young. Let us lay in the sun and count every beautiful thing we can see. Can't believe how strange it is to be anything at all."

    The other is the film Tree of Life. It's all about water! Water gives life, water sustains life, water takes life, water rages. Beauty and terror. It's a contemplative film about the struggle. And its led me to believe that the best we can do is to try to live in awe.

    I want to keep fighting too. Thanks.

    - Jonny

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  2. Jonny, that was so beautiful and kind. I am so thankful for your words. I can only hope that my experiences can somehow uplift others, as those greats who have come before me have done...

    As for the Tree of Life...! It was a life changing film for me, and keeps affecting every time I dare watch it again (mastery is often emotionally taxing, alas). Beauty and Terror.

    thanks again.
    B

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