Day 362: I'll have the Year, with a side of Terror please

This Friday marks one year since I lay in a feeble haze in the white box of doom and watched a cup and a half of red stem cells drip into my body. I feel that this anniversary should be a triumphant one; where I raise and wave my cancer-free flag, celebrating all of the accomplishments of this past year.

But to tell you the truth, I do not feel triumphant. I do not feel victorious. I don't feel brave. I feel like dissolving and disappearing forever. I thought I would feel different than this. But so many hard things have happened, some things that I can’t even write about. I try to reflect on this past year and honestly, it just really depresses me. The negative are overpowering the good right now. I’ve even tried making a list of the things I have accomplished. It’s not really helping.

Anniversaries are strange. They are a day like any other, going by. But they hold something else inside them—expectations, desires, longings. In some ways it feels like the day should be able to pass without a huge hullabaloo about it. But I feel it creeping closer, and I feel the weight of everything that this anniversary holds: this year, everything I have somehow endured, the physical battle and the emotional duress, the things I have lost... It doesn’t feel positive. I don’t feel like celebrating. This date represents and holds inside of it this entire year, and it’s really heavy.

I probably should try to not pour all of this year into a single day; but that seems hard too. I want to be the person I was—joyful, bursting to see the sun, dancing in my hospital gown. That part of me feels spent, used up. The world looks different. I feel like Life showed me its really grueling shit and I’m having a hard time loving it afterward. I don’t feel a mantra or a life lesson. Except that life actually tears people down. And it’s really hard to find a way to get back up. I’m really trying. I am really searching for things that make me feel alive again. I’ve been thinking about Self Care and trying to figure out the tools I can use to make myself happier. I make lists. I go for walks. I try to schedule things and time with people. I got a job that starts in a few weeks. I’m trying to do theatre. I bake a lot. I clean the house a lot.  I’m pickling and canning. I’m working on planning a workshop for DFCI. I’ve started doing more embroidery things, though my hands still don’t always function properly with those fine motor skills.

I’m trying to believe that I am still in process. It’s hard when now I’m getting back into the world, and people expect me to be like, “back” from cancer as if it was some horrible vacation and it’s over now. It’s not over. It’s not over. I feel the effects of cancer in a new way now than I did before, when I was just trying to not die. It’s not just a little blip of life that I missed. The world changed while I was in quarantine. Of course it did, I missed an ENTIRE YEAR. Everyone had babies. And that’s absolutely fabulous. I’m really psyched to be meeting all of the babies. It’s just one more thing that shifted and moved on while I was “away”. But I wasn’t off having an experience in another country or choosing the monastic life. I was literally in Salem MA this whole time, in my little apartment. For an entire year.

I feel robbed. And I don’t feel okay about it. I’m angry. Really, really angry in a way that I wasn’t before, even when I got diagnosed. Back then it was survival mode and I was like “I’m gonna get this shit done, BRB” and later it was such a physical challenge I didn’t have much time for anything else--and maybe I deal better with physical pain. Or maybe it has just worn me down to this place where I can’t seem to find the joy that I had. I just feel angry. And really sad.

I don’t know what to do. All I can seem to muster is to try and take stock every day individually. How do I feel, today? I am feeling good, today. I am doing well, today. I am feeling lonely, today. I am empty, today. I am sad, today. I am angry, today. I am ok, today. I am here, today. I hope that enough days will go by and this thing, whatever the hell it is, will eventually lift.



I am suddenly reminded of Rilke's words. I haven't thought of this in a while, and it literally just came wafting into my mind.

Let everything happen to you: beauty and terror. Just keep going.

So this is terror. Okay. Just keep going.